Achondroplasia Insights

This week's must-know community updates, latest research & events

New Report: Introduction to Gene Therapy

View the Full Report

The report is available for free online on the AllMyHealth website.

www.allmyhealth.io/reports

Stay tuned—next week, we'll follow up with our Introduction to Cell Therapy.

Would you like to sponsor the next report in the gene and cell series?

Enquire here
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Top Stories

Latest Research

In a recent study by Guillen-Navarro et al. (2025), the alignment between clinical practice and international consensus recommendations for managing infants and young children with achondroplasia was examined. The study found that while there are comprehensive guidelines available, actual clinical practices vary significantly. This discrepancy suggests a need for increased awareness and implementation of the recommended practices to ensure consistent and optimal care for patients with achondroplasia. The research highlighted the importance of a multidisciplinary approach to patient care, especially in the first two years of life, which is critical for monitoring potential complications and ensuring proper development. Guillen-Navarro et al. emphasized that adherence to the international guidelines is essential for improving patient outcomes, and they advocate for efforts to bridge the gap between the established recommendations and the care that patients receive.

Clinical Trials

Community News

Little People of AmericaLittle People of AmericaMar 18, 2025

LPA is thrilled that Dickinson High School is moving forward with changing their mascot. This is a wonderful example of people coming together and making a positive change for everyone. Congratulations to the Dickinson Public Schools and community for their commitment to having everyone feel like a proud member of the Dickinson family. This is a true testament that anyone, from anywhere, can be a champion for change.

Little People of America Post
The MAGIC FoundationThe MAGIC FoundationMar 12, 2025

✨ BIG NEWS! ✨ Registration for the 31st MAGIC Foundation Annual Convention is NOW OPEN! 🎉

Get ready for expert-led sessions, inspiring speakers, and a weekend of learning, connection, and support for families navigating growth disorders. Plus, the full program is available—start planning your experience today!

Don’t wait—secure your spot now! 📣

https://www.magicfoundation.org/31st-annual-convention

Human Growth FoundationHuman Growth FoundationMar 13, 2025

The Human Growth Foundation (HGF) Research Grants Program is now accepting Letters of Intent (LOI) to #support#groundbreaking studies in human growth and its #disorders. 💡

💰 #Grant Amount: Up to $10,000 per award (up to 4 grants available!)

👉 Learn more and apply here: hgfound.org/hgf-research-grants

📅 Deadline for LOI: May 10, 2025

This is your chance to advance #research in #biological,#psychological, and #educational aspects of growth disorders. Special consideration for novel ideas and new investigators! 💚 Like, follow, and share to spread the word!

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Upcoming Events

MAR
19
Growth Hormone Deficiency CME Human Growth Foundation • Greenvale, NY    Online
JUN
12
Summer Camp for Kidney and Adrenal Conditions The MAGIC Foundation    In Person
OCT
23
Medical Symposium Cruise Human Growth Foundation • Greenvale, NY    In Person
OCT
23
Nurses' Educational Cruise Human Growth Foundation • Greenvale, NY    In Person