- Achondroplasia Insights
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- Achondroplasia Insights
Achondroplasia Insights
This week's must-know community updates, latest research & events
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Apply now: feature your voice in our cell & gene therapy series Cell and gene therapies are transforming rare disease treatment, offering new hope where options were once limited. But how do they work, and what choices exist for your community? We're launching a special content series to help our 15k+ readers navigate this evolving landscape – and we need your voice! Be part of the conversation, whether you are: • A patient or carer • A patient support group • Developing cell & gene therapies • Administering cell & gene therapies 📅 Enquiries close: March 12 Let's educate, advocate and drive change together. | ||||||||||||||||
Latest ResearchIn a study by Merchant et al. (2025), the clinical and economic impacts of achondroplasia were examined by comparing individuals with the condition to matched controls without it. The study focused on healthcare resource utilization (HCRU) and associated costs, providing insights into the economic burden of the disease. The research highlighted that achondroplasia affects not only the physical health but also the economic well-being of those diagnosed with it. The findings revealed that both pediatric and adult populations with achondroplasia incurred higher healthcare costs and utilized more healthcare resources compared to the control group. This suggests that achondroplasia leads to increased medical needs throughout an individual's life, which translates into a significant economic impact. The study underscores the importance of understanding the full scope of achondroplasia's burden on patients and the healthcare system. | ||||||||||||||||
Community News
LPA Scholarships are now open! 🎓
Not only is @4ft5photographer an exceptionally talented photographer, but apparently he enjoys tormenting himself for a good cause. Better him than us. Please visit https://tinyurl.com/yh6whwsn or click the link in our bio to support his generosity! We’ll probably be cheering him on from the couch with 26.2 donuts.
Standing tall isn’t just about height, it’s about #resilience,#courage, and refusing to let anything hold you back. Like Tom Cruise, who turned #challenges into #strength, we can all rise above #negativity. Let’s stand together against bullying and #empower each other to chase our #dreams. 💪✨ | ||||||||||||||||
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